Bill Text: FL S0860 | 2019 | Regular Session | Comm Sub


Bill Title: Alzheimer's Disease

Spectrum:

Status: (Introduced - Dead) 2019-04-26 - Laid on Table, companion bill(s) passed, see CS/CS/HB 449 (Ch. 2019-147) [S0860 Detail]

Download: Florida-2019-S0860-Comm_Sub.html
       Florida Senate - 2019                              CS for SB 860
       
       
        
       By the Committee on Appropriations; and Senators Stargel and
       Gibson
       
       
       
       
       576-04183-19                                           2019860c1
    1                        A bill to be entitled                      
    2         An act relating to Alzheimer’s disease; amending s.
    3         430.501, F.S.; increasing membership of the
    4         Alzheimer’s Disease Advisory Committee; revising
    5         representation requirements of the committee;
    6         requiring the committee to submit an annual report to
    7         specified parties which includes certain information
    8         and recommendations; requiring the Department of
    9         Elderly Affairs to review and update the Alzheimer’s
   10         disease state plan every 3 years in collaboration with
   11         certain parties; providing requirements for the plan;
   12         amending s. 430.502, F.S.; establishing a specified
   13         memory disorder clinic; providing that certain clinics
   14         shall not receive decreased funding for a specified
   15         reason; providing an effective date.
   16          
   17  Be It Enacted by the Legislature of the State of Florida:
   18  
   19         Section 1. Subsections (2) and (3) of section 430.501,
   20  Florida Statutes, are amended to read:
   21         430.501 Alzheimer’s Disease Advisory Committee; research
   22  grants.—
   23         (2) There is created an Alzheimer’s Disease Advisory
   24  Committee, composed of 15 10 members to be selected by the
   25  Governor, which shall advise the Department of Elderly Affairs
   26  in the performance of its duties under this act. All members
   27  must be residents of the state. The committee shall advise the
   28  department regarding legislative, programmatic, and
   29  administrative matters that relate to persons living with
   30  Alzheimer’s disease victims and their caretakers.
   31         (3)(a) The committee membership shall include the following
   32  be representative as follows:
   33         1. Eleven members appointed by the Governor.
   34         a. At least 4 of the 11 10 members must be licensed
   35  pursuant to chapter 458 or chapter 459 or hold a Ph.D. degree
   36  and be currently involved in the research of Alzheimer’s
   37  disease.
   38         b.2.The 10 members must include At least 4 of the 11
   39  members must be persons who have been caregivers of persons
   40  living with victims of Alzheimer’s disease.
   41         c.3. Whenever possible, the 10 members appointed by the
   42  Governor shall include one 1 each of the following
   43  professionals: a gerontologist, a geriatric psychiatrist, a
   44  geriatrician, a neurologist, a social worker, and a registered
   45  nurse, and a first responder.
   46         2.Two members appointed by the President of the Senate,
   47  one of whom must be a sitting member of the Senate, and two
   48  members appointed by the Speaker of the House of
   49  Representatives, one of whom must be a sitting member of the
   50  House of Representatives.
   51         (b)1. The Governor shall appoint members from a broad
   52  cross-section of public, private, and volunteer sectors. All
   53  nominations shall be forwarded to the Governor by the Secretary
   54  of Elderly Affairs in accordance with this subsection.
   55         2. Members shall be appointed to 4-year staggered terms in
   56  accordance with s. 20.052, except for the sitting members of the
   57  Senate and House of Representatives, who shall be appointed to a
   58  term corresponding to their term of office.
   59         3. The Secretary of Elderly Affairs shall serve as an ex
   60  officio member of the committee.
   61         4. The committee shall elect one of its members to serve as
   62  chair for a term of 1 year.
   63         5. The committee may establish subcommittees as necessary
   64  to carry out the functions of the committee.
   65         6. The committee shall meet quarterly, or as frequently as
   66  needed.
   67         7.The committee shall submit an annual report to the
   68  Governor, the President of the Senate, the Speaker of the House
   69  of Representatives, and the Secretary of Elderly Affairs on or
   70  before each September 1. The annual report shall include
   71  information and recommendations on Alzheimer’s disease policy;
   72  all state-funded efforts in Alzheimer’s disease research,
   73  clinical care, institutional, home-based, and community-based
   74  programs and the outcomes of such efforts; and any proposed
   75  updates to the Alzheimer’s disease state plan submitted under
   76  subparagraph 8.
   77         8.Beginning in 2020, and every third year thereafter, on
   78  or before November 1, the Department of Elderly Affairs shall
   79  review the Alzheimer’s disease state plan and submit an updated
   80  state plan to the Governor, the President of the Senate, and the
   81  Speaker of the House of Representatives. The Department of
   82  Elderly Affairs shall utilize the annual reports submitted by
   83  the committee and collaborate with state Alzheimer’s disease
   84  organizations and professionals when considering such updates to
   85  the Alzheimer’s disease state plan. The state plan shall:
   86         a.Assess the current and future impact on the state of
   87  Alzheimer’s disease and related forms of dementia.
   88         b.Examine the existing industries, services, and resources
   89  addressing the needs of persons having Alzheimer’s disease or a
   90  related form of dementia and their family caregivers.
   91         c.Examine the needs of persons of all cultural backgrounds
   92  having Alzheimer’s disease or a related form of dementia and how
   93  their lives are affected by the disease from early-onset,
   94  through mid-stage, to late-stage.
   95         d.Develop a strategy to mobilize a state response to this
   96  public health crisis.
   97         e.Provide information regarding:
   98         (I)State trends with respect to persons having Alzheimer’s
   99  disease or a related form of dementia and their needs,
  100  including, but not limited to:
  101         (A)The role of the state in providing community-based
  102  care, long-term care, and family caregiver support, including
  103  respite, education, and assistance to persons who are in the
  104  early stages of Alzheimer’s disease, who have early-onset
  105  Alzheimer’s disease, or who have a related form of dementia.
  106         (B)The development of state policy with respect to persons
  107  who have Alzheimer’s disease or a related form of dementia.
  108         (C)Surveillance of persons who have Alzheimer’s disease or
  109  a related form of dementia for the purpose of accurately
  110  estimating the number of such persons in the state at present
  111  and projected population levels.
  112         (II)Existing services, resources, and capacity, including,
  113  but not limited to:
  114         (A)The type, cost, and availability of dementia-specific
  115  services throughout the state.
  116         (B)Policy requirements and effectiveness for dementia
  117  specific training for professionals providing care.
  118         (C)Quality care measures employed by providers of care,
  119  including providers of respite, adult day care, assisted living
  120  facility, skilled nursing facility, and hospice services.
  121         (D)The capability of public safety workers and law
  122  enforcement officers to respond to persons having Alzheimer’s
  123  disease or a related form of dementia, including, but not
  124  limited to, responding to their disappearance, search and
  125  rescue, abuse, elopement, exploitation, or suicide.
  126         (E)The availability of home and community-based services
  127  and respite care for persons having Alzheimer’s disease or a
  128  related form of dementia and education and support services to
  129  assist their families and caregivers.
  130         (F)An inventory of long-term care facilities and
  131  community-based services serving persons who have Alzheimer’s
  132  disease or a related form of dementia.
  133         (G)The adequacy and appropriateness of geriatric
  134  psychiatric units for persons who have behavior disorders
  135  associated with Alzheimer’s disease or a related form of
  136  dementia.
  137         (H)Residential assisted living options for persons who
  138  have Alzheimer’s disease or a related form of dementia.
  139         (I)The level of preparedness of service providers before,
  140  during, and after a catastrophic emergency involving persons who
  141  have Alzheimer’s disease or a related form of dementia and their
  142  caregivers and families.
  143         (III)Needed state policies or responses, including, but
  144  not limited to, directions for the provision of clear and
  145  coordinated care, services, and support to persons who have
  146  Alzheimer’s disease or a related form of dementia and their
  147  caregivers and families and strategies to address any identified
  148  gaps in the provision of services.
  149         9.7. The Department of Elderly Affairs shall provide staff
  150  support to assist the committee in the performance of its
  151  duties.
  152         10.8. Members of the committee and subcommittees shall
  153  receive no salary, but are entitled to reimbursement for travel
  154  and per diem expenses, as provided in s. 112.061, while
  155  performing their duties under this section.
  156         Section 2. Subsection (1) of section 430.502, Florida
  157  Statutes, is amended to read:
  158         430.502 Alzheimer’s disease; memory disorder clinics and
  159  day care and respite care programs.—
  160         (1) There is established:
  161         (a) A memory disorder clinic at each of the three medical
  162  schools in this state;
  163         (b) A memory disorder clinic at a major private nonprofit
  164  research-oriented teaching hospital, and may fund a memory
  165  disorder clinic at any of the other affiliated teaching
  166  hospitals;
  167         (c) A memory disorder clinic at the Mayo Clinic in
  168  Jacksonville;
  169         (d) A memory disorder clinic at the West Florida Regional
  170  Medical Center;
  171         (e) A memory disorder clinic operated by Health First in
  172  Brevard County;
  173         (f) A memory disorder clinic at the Orlando Regional
  174  Healthcare System, Inc.;
  175         (g) A memory disorder center located in a public hospital
  176  that is operated by an independent special hospital taxing
  177  district that governs multiple hospitals and is located in a
  178  county with a population greater than 800,000 persons;
  179         (h) A memory disorder clinic at St. Mary’s Medical Center
  180  in Palm Beach County;
  181         (i) A memory disorder clinic at Tallahassee Memorial
  182  Healthcare;
  183         (j) A memory disorder clinic at Lee Memorial Hospital
  184  created by chapter 63-1552, Laws of Florida, as amended;
  185         (k) A memory disorder clinic at Sarasota Memorial Hospital
  186  in Sarasota County;
  187         (l) A memory disorder clinic at Morton Plant Hospital,
  188  Clearwater, in Pinellas County;
  189         (m) A memory disorder clinic at Florida Atlantic
  190  University, Boca Raton, in Palm Beach County; and
  191         (n) A memory disorder clinic at Florida Hospital in Orange
  192  County; and
  193         (o)A memory disorder clinic at Miami Jewish Health Systems
  194  in Miami-Dade County,
  195  
  196  for the purpose of conducting research and training in a
  197  diagnostic and therapeutic setting for persons suffering from
  198  Alzheimer’s disease and related memory disorders. However,
  199  memory disorder clinics funded as of June 30, 1995, shall not
  200  receive decreased funding due solely to subsequent additions of
  201  memory disorder clinics in this subsection.
  202         Section 3. This act shall take effect July 1, 2019.

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