Bill Text: IL HB0823 | 2019-2020 | 101st General Assembly | Engrossed

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Bill Title: Creates the Sickle Cell Prevention, Care, and Treatment Program Act. Requires the Department of Healthcare and Family Services to establish a grant program for the purpose of providing for the prevention, care, and treatment of sickle cell disease and for educational programs concerning the disease. Requires the Department to: (1) develop application criteria and standards of eligibility for groups or organizations that apply for funds under the program; and (2) make available grants to groups and organizations who meet the eligibility standards set by the Department. Provides that the highest priority for grants shall be accorded to established sickle cell disease community-based organizations, and priority shall be given to ensuring the establishment of sickle cell disease centers in underserved areas that have a higher population of sickle cell disease patients. Requires the Department to determine the maximum amount available for each grant; determine policies for the expiration and renewal of grants; require that all grant funds be used for the purpose of prevention, care, and treatment of sickle cell disease or for educational programs concerning the disease; and develop a sickle cell disease educational outreach program that includes the dissemination of educational materials to specified persons and institutions. Permits the Department to contract with an entity to implement the sickle cell disease educational outreach program. Requires the Department to adopt rules. Requires the Department to conduct a study to determine the prevalence, impact, and needs of individuals with sickle cell disease and the sickle cell trait in Illinois. Provides that implementation of the Act is subject to appropriation. Amends the State Finance Act. Creates the Sickle Cell Chronic Disease Fund.

Spectrum: Partisan Bill (Democrat 20-0)

Status: (Engrossed - Dead) 2020-06-24 - Pursuant to Senate Rule 3-9(b) / Referred to Assignments [HB0823 Detail]

Download: Illinois-2019-HB0823-Engrossed.html

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HB0823 Engrossed LRB101 04579 CPF 49587 b
AN ACT concerning health.
Be it enacted by the People of the State of Illinois,
represented in the General Assembly:
Section 5. The Department of Public Health Powers and
Duties Law of the Civil Administrative Code of Illinois is
amended by adding Section 2310-218 as follows:
(20 ILCS 2310/2310-218 new)
Sec. 2310-218. Phlebotomy on children and adults with
intellectual and developmental disabilities.
(a) As used in this Section, "phlebotomist" means a person
who is certified to draw blood for diagnostic testing,
transfusion, research, or blood donation.
(b) The Department shall develop and make available
training materials that ensure that all phlebotomists are
trained in the most current methods of drawing blood from
children and adults with intellectual and developmental
disabilities. The materials shall conform to the best available
practices used for drawing blood in a safe manner that is as
comfortable as possible for the individual from whom blood is
drawn and for the families, guardians, caretakers, or
companions of the individual accompanying him or her while
blood is drawn. The Department shall review these materials
every 3 years to ensure that they conform with the best

HB0823 Engrossed - 2 - LRB101 04579 CPF 49587 b
available practices.
(c) The Department shall ensure that health care providers,
as that term is defined under the Health Care Services Lien
Act, and laboratories, as that term is defined under the
Illinois Clinical Laboratory and Blood Bank Act, that employ a
phlebotomist incorporate the training described in subsection
(b) as part of a phlebotomist's initial employment training and
as part of any ongoing training to maintain competencies and
certifications as a phlebotomist.