Bill Text: NY K00573 | 2019-2020 | General Assembly | Introduced


Bill Title: Memorializing Governor Andrew M. Cuomo to proclaim June 21, 2019, as ALS/MND Global Day in the State of New York

Spectrum: Partisan Bill (Republican 1-0)

Status: (Passed) 2019-06-14 - adopted [K00573 Detail]

Download: New_York-2019-K00573-Introduced.html

Assembly Resolution No. 573

BY: M. of A. Manktelow

        LEGISLATIVE      RESOLUTION  memorializing  Governor
        Andrew M.  Cuomo  to  proclaim  June  21,  2019,  as
        ALS/MND Global Day in the State of New York

  WHEREAS,  It is the custom of this Legislative Body to help increase
awareness of serious health conditions that affect the lives of citizens
of New York State; and

  WHEREAS, Attendant to such concern, and  in  full  accord  with  its
long-standing  traditions,  this  Legislative  Body  is  justly proud to
memorialize Governor Andrew M. Cuomo  to  proclaim  June  21,  2019,  as
ALS/MND  Global  Day  in  the State of New York, in conjunction with the
observance of National ALS/MND Global Day; and

  WHEREAS,  Every  year  the   International   Alliance   of   ALS/MND
Associations  celebrates  June  21st as the global day of recognition of
ALS/MND, a disease which affects people in every country of  the  world;
it  does not discriminate on the basis of race, ethnicity, socioeconomic
status or religion; for  every  person  diagnosed,  the  impact  of  the
disease will be forever felt by their loved ones; and

  WHEREAS,  June  21 was chosen for this observance because it is when
the summer solstice begins; the solstice signifies a turning point,  and
each  year  the  ALS/MND  community  undertakes a range of activities to
express their hope this day will be another turning point in the  search
for cause, treatment and cure of ALS/MND; and

  WHEREAS,   According   to  the  International  Alliance  of  ALS/MND
Associations, ALS, which is commonly referred to as motor neuron disease
(MND) outside  of  the  United  States,  affects  an  estimated  350,000
individuals around the globe and kills more than 100,000 annually; there
are  approximately 140,000 new cases diagnosed worldwide each year, that
is 384 new cases every day; and

  WHEREAS, ALS/MND can impact anyone,  anywhere,  regardless  of  age,
however, it is more often found in the 40-70 year age group; only 10% of
cases are familial with the remaining 90% sporadic; and

  WHEREAS, ALS/MND is characterized by progressive degeneration of the
motor  nerve cells in the brain and spinal cord; the motor cells control
the muscles that enable us to move around, speak, breathe, and  swallow;
with no nerves to activate them, muscles gradually weaken and waste; and

  WHEREAS, Symptoms may include muscle weakness and paralysis, as well
as  impaired  speaking, swallowing, and breathing. Progress is generally
rapid, with an average life expectancy of between  two  and  five  years
from the onset of symptoms; and

  WHEREAS,  The  disease  affects  each individual differently and can
have a devastating impact on family, careers, and friends;  the  rapidly
progressive  nature  of  the  disease  requires  constant  adaptation to
increasing and changing levels of  disability,  which  in  turn  require
increased levels of support; and


  WHEREAS,  ALS/MND  Global  Day  increases  the public's awareness of
patients'  circumstances  and  acknowledges  the  terrible  impact  this
disease  has  not  only  on patients but on their families as well; now,
therefore, be it

  RESOLVED, That this Legislative Body pause in its  deliberations  to
memorialize  Governor  Andrew  M.  Cuomo  to  proclaim June 21, 2019, as
ALS/MND Global Day in the State of New York; and be it further

  RESOLVED, That a copy of this  Resolution,  suitably  engrossed,  be
transmitted  to  The Honorable Andrew M. Cuomo, Governor of the State of
New York.
feedback