Bill Text: SC H3036 | 2019-2020 | 123rd General Assembly | Comm Sub

NOTE: There are more recent revisions of this legislation. Read Latest Draft

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Bill Title: Neonatal testing

Spectrum: Slight Partisan Bill (Republican 14-5)

Status: (Passed) 2019-06-05 - Act No. 55 [H3036 Detail]

Download: South_Carolina-2019-H3036-Comm_Sub.html

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(Text matches printed bills. Document has been reformatted to meet World Wide Web specifications.)

COMMITTEE REPORT

April 25, 2019

H. 3036

Introduced by Reps. McCravy, Parks, West, Gagnon, Martin, Hiott, Burns, Huggins, G.R. Smith, Trantham, Ridgeway, Thayer, W. Cox, Toole, Johnson, Jefferson, Clary, Gilliard and Henegan

S. Printed 4/25/19--S.

Read the first time April 17, 2019.

            

THE COMMITTEE ON MEDICAL AFFAIRS

To whom was referred a Bill (H. 3036) to amend the Code of Laws of South Carolina, 1976, so as to enact "Dylan's law"; and by adding Section 44-37-35 so as to require, etc., respectfully

REPORT:

That they have duly and carefully considered the same and recommend that the same do pass:

DANIEL B. VERDIN III for Committee.

            

A BILL

TO AMEND THE CODE OF LAWS OF SOUTH CAROLINA, 1976, SO AS TO ENACT "DYLAN'S LAW"; AND BY ADDING SECTION 44-37-35 SO AS TO REQUIRE NEONATAL TESTING FOR CERTAIN GENETIC DISORDERS AND DISEASES AND FOR OTHER PURPOSES.

Be it enacted by the General Assembly of the State of South Carolina:

SECTION    1.    This act may be known and cited as "Dylan's law".

SECTION    2.    Chapter 37, Title 44 of the 1976 Code is amended by adding:

"Section 44-37-35.    (A)    Neonatal testing conducted pursuant to Section 44-37-30 must include testing for the following:

(1)    Krabbe disease;

(2)    Pompe disease; and

(3)    Hurler syndrome.

(B)    The department shall require additional lysosomal storage disorders to be tested upon the recommendations of the Newborn Screening Advisory Committee and in accordance with Section 44-37-30 pursuant to a duly promulgated regulation as testing for such disorders becomes available."

SECTION    3.    Section 44-37-30 of the 1976 Code is amended by adding an appropriately lettered subsection at the end to read:

"( )    The department shall establish the Newborn Screening Advisory Committee to review the feasibility and advisability of including additional metabolic, genetic, and congenital disorders in the neonatal testing conducted pursuant to this section. The committee must be multidisciplinary and composed of members deemed appropriate by the department."

SECTION    4.    This act takes effect upon approval by the Governor.