US Congress House Bill 4228 (Prior Session Legislation)

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Spectrum: Moderate Partisan Bill (Democrat 68-9)
Status: Introduced on September 6 2019 - 25% progression, died in committee
Action: 2019-09-09 - Referred to the Subcommittee on Health.
Pending: House Subcommittee on Health Committee
Text: Latest bill text (Introduced) [PDF]

The bill reauthorizes through FY2024 the National Institutes of Health Rare Disease Regional Centers of Excellence and expands activities to facilitate research and increase awareness of rare diseases and conditions. (Rare diseases and conditions are those with a prevalence of fewer than 200,000 individuals in the United States.) The Centers for Disease Control and Prevention (CDC) may expand infrastructure and activities to track the epidemiology of up to four rare diseases and conditions and incorporate this information into a National Rare Disease or Condition Surveillance System. The Agency for Healthcare Research and Quality must expand its activities to increase health care providers' awareness of rare diseases and conditions. The National Academies of Sciences, Engineering, and Medicine, or another appropriate entity, must update the 2010 report Rare Diseases and Orphan Products: Accelerating Research and Development.

RARE Act of 2019 Rare disease Advancement, surveillance Research, and Education Act of 2019

Rep. Andre Carson [D-IN]	Rep. Richard Hudson [R-NC]	Rep. Julia Brownley [D-CA]	Rep. Larry Bucshon [R-IN]
Rep. Peter DeFazio [D-OR]	Rep. Theodore Deutch [D-FL]	Rep. Brian Fitzpatrick [R-PA]	Rep. Sheila Jackson-Lee [D-TX]
Sen. Ben Lujan [D-NM]	Rep. Carolyn Maloney [D-NY]	Rep. Gwen Moore [D-WI]	Rep. Stephanie Murphy [D-FL]
Rep. Eleanor Norton [D-DC]	Rep. Jamie Raskin [D-MD]	Rep. Harley Rouda [D-CA]	Rep. Thomas Suozzi [D-NY]
Rep. Jackie Walorski [R-IN]	Rep. Peter Visclosky [D-IN]	Rep. Joyce Beatty [D-OH]	Rep. Eddie Johnson [D-TX]
Rep. Susan Brooks [R-IN]	Rep. Mark Pocan [D-WI]	Rep. Peter King [R-NY]	Rep. Lisa Rochester [D-DE]
Rep. Cindy Axne [D-IA]	Rep. Sean Maloney [D-NY]	Rep. Luis Correa [D-CA]	Rep. Josh Harder [D-CA]
Sen. Peter Welch [D-VT]	Rep. John Rutherford [R-FL]	Rep. Darren Soto [D-FL]	Rep. Ro Khanna [D-CA]
Rep. Donald Payne [D-NJ]	Rep. C.A. Ruppersberger [D-MD]	Rep. Bobby Rush [D-IL]	Rep. David Joyce [R-OH]
Rep. Joseph Kennedy [D-MA]	Rep. Lloyd Doggett [D-TX]	Rep. Alcee Hastings [D-FL]	Rep. Janice Schakowsky [D-IL]
Rep. Gregory Meeks [D-NY]	Rep. Ann Kuster [D-NH]	Rep. Lucy McBath [D-GA]	Rep. Raul Grijalva [D-AZ]
Rep. Robin Kelly [D-IL]	Rep. Al Lawson [D-FL]	Rep. Doris Matsui [D-CA]	Rep. John Lewis [D-GA]
Rep. James McGovern [D-MA]	Rep. Abby Finkenauer [D-IA]	Rep. Barbara Lee [D-CA]	Rep. G. Butterfield [D-NC]
Rep. Angela Craig [D-MN]	Rep. Eliot Engel [D-NY]	Rep. Tom Malinowski [D-NJ]	Rep. Bennie Thompson [D-MS]
Rep. Jerrold Nadler [D-NY]	Rep. Sean Casten [D-IL]	Rep. Albio Sires [D-NJ]	Rep. Stephen Lynch [D-MA]
Rep. Rebecca Sherrill [D-NJ]	Rep. Karen Bass [D-CA]	Rep. Danny Davis [D-IL]	Rep. Lucille Roybal-Allard [D-CA]
Rep. Nanette Barragan [D-CA]	Rep. Tony Cardenas [D-CA]	Rep. Yvette Clarke [D-NY]	Rep. Terri Sewell [D-AL]
Rep. Jerry McNerney [D-CA]	Rep. Kendra Horn [D-OK]	Rep. John Garamendi [D-CA]	Rep. Judy Chu [D-CA]
Sen. Roger Marshall [R-KS]	Rep. Tom O'Halleran [D-AZ]	Rep. Marc Veasey [D-TX]	Rep. David Price [D-NC]
Rep. Ayanna Pressley [D-MA]

Date	Chamber	Action
2019-09-09	House	Referred to the Subcommittee on Health.
2019-09-09	House	Sponsor introductory remarks on measure. (CR E1107)
2019-09-06	House	Referred to the House Committee on Energy and Commerce.
2019-09-06	House	Introduced in House

Type	Source
Summary	https://www.congress.gov/bill/116th-congress/house-bill/4228/all-info
Text	https://www.congress.gov/116/bills/hr4228/BILLS-116hr4228ih.pdf