US Congress House Bill 534 (Prior Session Legislation)

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Spectrum: Moderate Partisan Bill (Democrat 5-1)
Status: Introduced on January 14 2019 - 25% progression, died in committee
Action: 2019-01-25 - Referred to the Subcommittee on Health.
Pending: House Subcommittee on Health Committee
Text: Latest bill text (Introduced) [PDF]

Authorizes newborn screenings for adrenoleukodystrophy (also known as ALD), which is a hereditary condition that damages the insulating membrane of nerve cells in the brain. The bill authorizes hospitals, child care centers, clinics, and similar institutions to test newborns for ALD in accordance with state protocols; such protocols must be approved by the Discretionary Advisory Committee on Heritable Disorders in Newborns and Children. The bill also reauthorizes for FY2020-FY2023 the heritable disorders screening program for newborns and children that is administered by the Health Resources and Services Administration.

Aidan’s Law

Rep. Yvette Clarke [D-NY]	Rep. Lee Zeldin [R-NY]	Rep. Bobby Rush [D-IL]	Rep. Zoe Lofgren [D-CA]
Rep. Dwight Evans [D-PA]	Rep. Nita Lowey [D-NY]

Date	Chamber	Action
2019-01-25	House	Referred to the Subcommittee on Health.
2019-01-14	House	Referred to the House Committee on Energy and Commerce.
2019-01-14	House	Introduced in House

Type	Source
Summary	https://www.congress.gov/bill/116th-congress/house-bill/534/all-info
Text	https://www.congress.gov/116/bills/hr534/BILLS-116hr534ih.pdf