Bill Text: CA AB2735 | 2019-2020 | Regular Session | Introduced

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Bill Title: Genetically Handicapped Persons Program.

Spectrum: Partisan Bill (Democrat 1-0)

Status: (Introduced - Dead) 2020-03-17 - In committee: Hearing postponed by committee. [AB2735 Detail]

Download: California-2019-AB2735-Introduced.html

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CALIFORNIA LEGISLATURE— 2019–2020 REGULAR SESSION

Assembly Bill

No. 2735

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Introduced by Assembly Member Bonta

February 20, 2020

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An act to amend Section 125130 of the Health and Safety Code, relating to metabolic disorders.

LEGISLATIVE COUNSEL'S DIGEST

AB 2735, as introduced, Bonta. Genetically Handicapped Persons Program.

Existing law requires the Director of Health Care Services to establish and administer a program, called the Holden-Moscone-Garamendi Genetically Handicapped Persons Program (GHPP), for the medical care of persons with specified genetic conditions, including cystic fibrosis, hemophilia, sickle cell disease, Huntington’s disease, Friedreich’s Ataxia, Joseph’s disease, and Von Hippel-Landau syndrome, specified metabolic disorders, and other genetic organic acidemias that require specialized treatment or service available from only a limited number of program-approved sources. Existing law requires the program to provide access for these persons to social support services.

This bill would add mucopolysaccharidosis, a group of metabolic disorders, to the list of medical conditions eligible for coverage under the GHPP.

Digest Key

Vote: MAJORITY   Appropriation: NO   Fiscal Committee: YES   Local Program: NO  

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Bill Text

The people of the State of California do enact as follows:

SECTION 1.

 Section 125130 of the Health and Safety Code is amended to read:

125130.

 (a) The Director of Health Care Services shall establish and administer a program for the medical care of persons with genetically handicapping certain genetic conditions, including cystic fibrosis, hemophilia, sickle cell disease, Huntington’s disease, Friedreich’s Ataxia, Joseph’s disease, Von Hippel-Landau syndrome, and the following hereditary metabolic disorders: phenylketonuria, homocystinuria, branched chain amino acidurias, disorders of propionate and methylmalonate metabolism, urea cycle disorders, hereditary orotic aciduria, Wilson’s Disease, galactosemia, disorders of lactate and pyruvate metabolism, tyrosinemia, hyperornithinemia, mucopolysaccharidosis, and other genetic organic acidemias that require specialized treatment or service available from only a limited number of program-approved sources.

(b) The program shall also provide access to social support services, that may help ameliorate the physical, psychological, and economic problems attendant to genetically handicapping conditions, the genetic conditions specified in subdivision (a), in order that the genetically handicapped a person with one of these conditions may function at an optimal level commensurate with the degree of impairment.

(c) The medical and social support services may be obtained through physicians and surgeons at Genetically Handicapped Persons Program specialized centers, and other providers that qualify pursuant to the regulations of the department to provide the services. “Medical care,” as used in this section, is limited to noncustodial medical and support services.

(d) The director shall adopt regulations that are necessary for the implementation of this article.