Bill Text: NY S00593 | 2023-2024 | General Assembly | Amended

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Bill Title: Creates a Down syndrome awareness program to provide up-to-date and evidence-based information on Down syndrome to health care providers who order tests for a pregnant woman or infants to screen for Down syndrome.

Spectrum: Partisan Bill (Republican 4-0)

Status: (Introduced) 2024-01-03 - REFERRED TO MENTAL HEALTH [S00593 Detail]

Download: New_York-2023-S00593-Amended.html

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                STATE OF NEW YORK
        ________________________________________________________________________

                                         593--A

                               2023-2024 Regular Sessions

                    IN SENATE

                                     January 5, 2023
                                       ___________

        Introduced  by Sens. ORTT, BORRELLO, OBERACKER -- read twice and ordered
          printed, and when printed to be committed to the Committee  on  Mental
          Health  --  committee  discharged,  bill amended, ordered reprinted as
          amended and recommitted to said committee

        AN ACT to amend the public health law,  in  relation  to  Down  syndrome
          diagnosis awareness

          The  People of the State of New York, represented in Senate and Assem-
        bly, do enact as follows:

     1    Section 1.  Subdivision 1 of section 207 of the public health  law  is
     2  amended by adding a new paragraph (h) to read as follows:
     3    (h)(i)  A  Down syndrome awareness program shall be created to provide
     4  up-to-date and evidence-based information  about  Down  syndrome,  in  a
     5  written  or  alternative format to health care providers who order tests
     6  for a pregnant woman or an infant to screen for Down syndrome that shall
     7  include, but not be limited to, the following:
     8    (1) expected physical, developmental,  educational,  and  psychosocial
     9  outcomes;
    10    (2) life expectancy;
    11    (3) the clinical course description;
    12    (4) expected intellectual and functional development;
    13    (5) available intervention or treatment options;
    14    (6) information hotlines specific to Down syndrome;
    15    (7) relevant resource centers or clearinghouses;
    16    (8) national and local Down syndrome organizations; and
    17    (9) any other information the department deems necessary.
    18    (ii) The commissioner shall (1) examine and utilize existing practices
    19  to  ensure  that the information provided under subparagraph (i) of this
    20  paragraph is culturally and linguistically appropriate for  all  recipi-
    21  ents;  and (2) meet annually with representatives from the Down syndrome
    22  community to ensure such information is current.
    23    § 2. This act shall take effect immediately.

         EXPLANATION--Matter in italics (underscored) is new; matter in brackets
                              [ ] is old law to be omitted.
                                                                   LBD03344-02-3