Bill Text: NY S08923 | 2023-2024 | General Assembly | Introduced

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Bill Title: Establishes the sickle cell disease education and mapping program to promote the screening and detection of sickle cell disease, educate the public regarding sickle cell disease, provide counseling and referral services and map locations of occurrence of sickle cell disease.

Spectrum: Partisan Bill (Democrat 1-0)

Status: (Introduced) 2024-03-28 - REFERRED TO HEALTH [S08923 Detail]

Download: New_York-2023-S08923-Introduced.html

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                STATE OF NEW YORK
        ________________________________________________________________________

                                          8923

                    IN SENATE

                                     March 28, 2024
                                       ___________

        Introduced  by  Sen.  PARKER -- read twice and ordered printed, and when
          printed to be committed to the Committee on Health

        AN ACT to amend the public health law, in  relation  to  establishing  a
          sickle cell education and mapping program

          The  People of the State of New York, represented in Senate and Assem-
        bly, do enact as follows:

     1    Section 1. The public health law is amended by adding  a  new  section
     2  2500-m to read as follows:
     3    §  2500-m.  Sickle  cell disease education and mapping program. 1. For
     4  the purposes of this section,  "approved  organization"  shall  mean  an
     5  organization  approved  by  the  commissioner, to provide services under
     6  this subdivision. Such organizations shall include, but not  be  limited
     7  to, the following:
     8    (a) a hospital licensed under article twenty-eight of this chapter;
     9    (b)  a  health  maintenance organization licensed under article forty-
    10  three of the insurance law or certified under article forty-four of this
    11  chapter;
    12    (c) an organization with program  expertise  in  sickle  cell  disease
    13  related issues;
    14    (d) a county or city health department; or
    15    (e) any combination of the above.
    16    2.  The  commissioner  is  hereby  authorized  to create a sickle cell
    17  disease education and mapping program. This program  is  established  to
    18  promote  the screening and detection of sickle cell disease, educate the
    19  public regarding sickle cell disease, provide  counseling  and  referral
    20  services and map locations of occurrence of sickle cell disease.
    21     3. The commissioner shall promulgate rules and regulations concerning
    22  the  education  and  mapping program, such education and mapping program
    23  shall:
    24    (a) establish a statewide public education and  outreach  campaign  to
    25  publicize  sickle  cell  disease  detection and education services, such
    26  campaign shall include: general community education, sickle cell disease
    27  screening services, information on the extent of coverage available  for

         EXPLANATION--Matter in italics (underscored) is new; matter in brackets
                              [ ] is old law to be omitted.
                                                                   LBD14435-01-4
        S. 8923                             2

     1  such  services  by  health  insurance,  any available medical assistance
     2  programs and other public and private programs;
     3    (b)  compile  data concerning sickle cell disease detection, including
     4  an education and mapping that lists such frequency of the occurrence  of
     5  sickle  cell disease in various locations in the state and dissemination
     6  of such data to the public on the department's website;
     7    (c) consult with approved organizations regarding  local  sickle  cell
     8  disease  screening services, counseling and referral services within the
     9  approved  organization's  region,  to  better  provide  notice  of  such
    10  services for the public; and
    11    (d) provide data for the development of health care education programs
    12  to diagnose and treat sickle cell disease by providing such frequency of
    13  the occurrence of sickle cell disease in various locations in the state.
    14    § 2. This act shall take effect immediately.