Bill Text: IL HJR0037 | 2009-2010 | 96th General Assembly | Introduced
Bill Title: Honors the Hemophilia Foundation of Illinois for its 60 years of dedicated, outstanding service to the Illinois bleeding disorder community and once again recognizes and commemorates the month of March as Hemophilia Awareness Month in the State of Illinois.
Spectrum: Partisan Bill (Democrat 1-0)
Status: (Passed) 2009-05-28 - Adopted Both Houses [HJR0037 Detail]
Download: Illinois-2009-HJR0037-Introduced.html
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1 | HOUSE JOINT RESOLUTION
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2 | WHEREAS, Since 1949, the Hemophilia Foundation of Illinois | ||||||
3 | has worked to improve the quality of life for over 1,800 | ||||||
4 | Illinois residents and their families who are affected by | ||||||
5 | inherited bleeding disorders; and
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6 | WHEREAS, Hemophilia is characterized by the absence of one | ||||||
7 | of the several clotting factors necessary to control bleeding, | ||||||
8 | with the standard care of treatment being the replacement of | ||||||
9 | absent clotting factors necessary to control the bleeding; and
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10 | WHEREAS, In addition to serving people with hemophilia, the | ||||||
11 | Foundation also provides services to Illinois residents with | ||||||
12 | other types of bleeding disorders, including von Willebrand | ||||||
13 | disease, which inflicts 1-2% of the general population; and
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14 | WHEREAS, Treatment for hemophilia requires regular | ||||||
15 | intravenous infusions; without treatment, people with | ||||||
16 | hemophilia face frequent, spontaneous bleeding episodes in | ||||||
17 | their joints, causing swelling in the joints, muscles, internal | ||||||
18 | organs, and brain; repeated bleeding episodes in joints results | ||||||
19 | in a chronic degenerative arthritic condition, which often | ||||||
20 | leads to frequent hospitalizations, permanent disability, and | ||||||
21 | chronic pain; bleeding episodes involving internal organs and | ||||||
22 | the brain can cause permanent damage, disability, and even |
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1 | death; severe bleeding episodes result in lost time at school | ||||||
2 | and/or work, decreased quality of life, and the inability to | ||||||
3 | perform basic living activities; and
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4 | WHEREAS, With proper care and access to comprehensive | ||||||
5 | medical resources, people living with hemophilia can control | ||||||
6 | bleeding episodes and can lead productive lives; federally | ||||||
7 | funded hemophilia treatment centers provide comprehensive | ||||||
8 | medical care to persons with hemophilia, von Willebrand | ||||||
9 | disease, and other bleeding and clotting disorders; and
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10 | WHEREAS, The Medical and Scientific Advisory Committee of | ||||||
11 | the National Hemophilia
Foundation recommends recombinant | ||||||
12 | factor products as the choice for persons with
Hemophilia VIII | ||||||
13 | and IX, the treatment of which is extremely costly; the | ||||||
14 | Foundation has made a difference in the lives of such people by | ||||||
15 | helping them with insurance questions, medical expenses, and | ||||||
16 | keeping them informed about advances in treatment; and
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17 | WHEREAS, Although there is no cure for these genetic | ||||||
18 | disorders, the Hemophilia Foundation of Illinois supports | ||||||
19 | research in health care advancements to create safer blood | ||||||
20 | products, giving persons with these diseases the ability to | ||||||
21 | manage their condition and minimize chronic complications; and
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22 | WHEREAS, Hemophilia and other inherited bleeding disorders |
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1 | are not well understood by the general public; and
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2 | WHEREAS, Since 1972, Illinois has expressed its committed | ||||||
3 | to proper care and treatment of children and adults with | ||||||
4 | hemophilia and other related bleeding disorders through the | ||||||
5 | enactment of the Hemophilia Care Program, as well as the | ||||||
6 | recently reenacted Hemophilia Advisory Review Board in 2007; in | ||||||
7 | addition, the 2004 resolution designating March as Hemophilia | ||||||
8 | Awareness Month focused on enhancing the understanding and | ||||||
9 | proper treatment of hemophilia and to encourage participation | ||||||
10 | in activities to support programs to properly treat hemophilia; | ||||||
11 | and
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12 | WHEREAS, Members of the Hemophilia Foundation of Illinois | ||||||
13 | and its extended community of supporters across the great state | ||||||
14 | of Illinois are celebrating Hemophilia Awareness Month by | ||||||
15 | visiting Springfield to participate in a Legislative Advocacy | ||||||
16 | Day at the Capitol on March 17, 2009; and
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17 | WHEREAS, The Hemophilia Foundation of Illinois is | ||||||
18 | celebrating its 60th anniversary in 2009 to recognize its | ||||||
19 | efforts in providing education, advocacy, and consumer | ||||||
20 | services for the Illinois bleeding disorder community; | ||||||
21 | therefore, be it
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22 | RESOLVED, BY THE HOUSE OF REPRESENTATIVES OF THE |
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1 | NINETY-SIXTH GENERAL ASSEMBLY OF THE STATE OF ILLINOIS, THE | ||||||
2 | SENATE CONCURRING HEREIN, that we applaud and honor the | ||||||
3 | Hemophilia Foundation of Illinois for its 60 years of | ||||||
4 | dedicated, outstanding service to the Illinois bleeding | ||||||
5 | disorder community; and be it further
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6 | RESOLVED, That we once again recognize and commemorate the | ||||||
7 | month of March as Hemophilia Awareness Month in the State of | ||||||
8 | Illinois; and be it further
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9 | RESOLVED, That a suitable copy of this resolution be | ||||||
10 | delivered to the Hemophilia Foundation of Illinois as a symbol | ||||||
11 | of our respect and esteem.
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