Bill Text: IL HB2189 | 2019-2020 | 101st General Assembly | Introduced
NOTE: There are more recent revisions of this legislation. Read Latest Draft
Bill Title: Amends the Genetic Information Privacy Act. Provides that "genetic testing" includes direct-to-consumer commercial genetic testing. Provides that a company providing direct-to-consumer commercial genetic testing is prohibited from sharing any genetic test information or other personally identifiable information about a consumer with any health or life insurance company without written consent from the consumer.
Spectrum: Moderate Partisan Bill (Democrat 8-1)
Status: (Passed) 2019-07-26 - Public Act . . . . . . . . . 101-0132 [HB2189 Detail]
Download: Illinois-2019-HB2189-Introduced.html
Bill Title: Amends the Genetic Information Privacy Act. Provides that "genetic testing" includes direct-to-consumer commercial genetic testing. Provides that a company providing direct-to-consumer commercial genetic testing is prohibited from sharing any genetic test information or other personally identifiable information about a consumer with any health or life insurance company without written consent from the consumer.
Spectrum: Moderate Partisan Bill (Democrat 8-1)
Status: (Passed) 2019-07-26 - Public Act . . . . . . . . . 101-0132 [HB2189 Detail]
Download: Illinois-2019-HB2189-Introduced.html
| ||||||||||||||||||||
| ||||||||||||||||||||
| ||||||||||||||||||||
| ||||||||||||||||||||
| ||||||||||||||||||||
1 | AN ACT concerning health.
| |||||||||||||||||||
2 | Be it enacted by the People of the State of Illinois,
| |||||||||||||||||||
3 | represented in the General Assembly:
| |||||||||||||||||||
4 | Section 5. The Genetic Information Privacy Act is amended | |||||||||||||||||||
5 | by changing Section 20 as follows:
| |||||||||||||||||||
6 | (410 ILCS 513/20)
| |||||||||||||||||||
7 | Sec. 20. Use of genetic testing information for insurance | |||||||||||||||||||
8 | purposes.
| |||||||||||||||||||
9 | (a) An insurer may not seek information derived from | |||||||||||||||||||
10 | genetic testing for use
in connection with a policy of accident | |||||||||||||||||||
11 | and health , long-term care, or life insurance. Except as
| |||||||||||||||||||
12 | provided in subsection (c), an insurer that receives | |||||||||||||||||||
13 | information derived from
genetic testing, regardless of the | |||||||||||||||||||
14 | source of that information, may not use
the information for a | |||||||||||||||||||
15 | nontherapeutic purpose as it
relates to a policy of accident | |||||||||||||||||||
16 | and health , long-term care, or life insurance.
| |||||||||||||||||||
17 | (b) An insurer shall not use or disclose protected health | |||||||||||||||||||
18 | information that is genetic information for underwriting | |||||||||||||||||||
19 | purposes. For purposes of this Section, "underwriting | |||||||||||||||||||
20 | purposes" means, with respect to an insurer: | |||||||||||||||||||
21 | (1) rules for, or determination of, eligibility | |||||||||||||||||||
22 | (including enrollment and continued eligibility) for, or | |||||||||||||||||||
23 | determination of, benefits under the plan, coverage, or |
| |||||||
| |||||||
1 | policy (including changes in deductibles or other | ||||||
2 | cost-sharing mechanisms in return for activities such as | ||||||
3 | completing a health risk assessment or participating in a | ||||||
4 | wellness program); | ||||||
5 | (2) the computation of premium or contribution amounts | ||||||
6 | under the plan, coverage, or policy (including discounts, | ||||||
7 | rebates, payments in kind, or other premium differential | ||||||
8 | mechanisms in return for activities, such as completing a | ||||||
9 | health risk assessment or participating in a wellness | ||||||
10 | program); | ||||||
11 | (3) the application of any pre-existing condition | ||||||
12 | exclusion under the plan, coverage, or policy; and | ||||||
13 | (4) other activities related to the creation, renewal, | ||||||
14 | or replacement of a contract of health insurance or health | ||||||
15 | benefits. | ||||||
16 | "Underwriting purposes" does not include determinations of | ||||||
17 | medical appropriateness where an individual seeks a benefit | ||||||
18 | under the plan, coverage, or policy. | ||||||
19 | This subsection (b) does not apply to insurers that are | ||||||
20 | issuing a long-term care policy, excluding a nursing home fixed | ||||||
21 | indemnity plan. | ||||||
22 | (c) An insurer may consider the results of genetic testing | ||||||
23 | in connection
with a policy of accident and health , long-term | ||||||
24 | care, or life insurance if the individual voluntarily
submits | ||||||
25 | the results and the results are favorable to the individual.
| ||||||
26 | (d) An insurer that possesses information derived from |
| |||||||
| |||||||
1 | genetic testing may
not release the information to a third | ||||||
2 | party, except as specified in this Act.
| ||||||
3 | (Source: P.A. 98-1046, eff. 1-1-15 .)
|